Agenda
Day 1
Thursday, 25 April
09:00
Registration, Coffee, Networking & Poster Exhibition
10:00
Welcome
SESSION 1
Chair: Dr. Hannah Linane, Palliative Medicine Physician and PhD Candidate
10:05
It Takes a Village Province: Developing a Model for Pediatric Palliative Care in Ontario, Canada
Prof. Adam Rapoport, Medical Director, Paediatric Advanced Care Team (PACT), The Hospital for Sick Children, Associate Paediatric Professor University of Toronto, Medical Director Emily's House Children's Hospice, Toronto
10:55
A Collaborative Approach to Care from Hospital to Home
Roscommon Community Palliative Team
Martina Kenny, Ursula O'Donoghue, Sarah Banahan, HSE
11:25
Question and Answers
11:35
Stretch, Coffee, Networking & Poster Exhibition
11:55
Opening Address
Stephen Donnelly, TD, Minister for Health
SESSION 2
Chairs: Ms. Erin Shepherd, Specialist Children's Liaison Nurse, The Jack & Jill Children's Foundation; Dr. Marian Williams, Paediatric Consultant, Paediatric Palliative Care, Belfast Health and Social Care Trust
12:10
Oral Abstract Presentations
Clinical Heterogeneity of Adolescent and Young Adult (AYA) Patients Referred to Specialist Paediatric Palliative Care Services in Ireland
Dr. Hannah Linane
Development and Psychometric Evaluation of the Novel Children's Palliative Care Outcome Scale (C-POS)
Prof. Lorna Fraser, Professor of Palliative Care and Child Health, King's College London
A Comprehensive Assessment of Supportive Care Needs for Parents of Children with Rare Diseases in Ireland - The PNS-RD Study
Dr. Suja Somanadhan, University College Dublin
12:46
Questions and Answers
13:00
Lunch, Networking & Poster Exhibition
SESSION 3
Chairs: Ms. Erin Shepherd, Dr. Marian Williams
14:00
Managing Complex Symptoms in Adolescents and Young Adults with Palliative Care Needs
Dr. Anna-Karenia Anderson, Paediatric Palliative Medical Consultant, and Medical Director at Royal Marsden Hospital and Shooting Star Children's Hospice
14:50
Young Person First: Adolescent and Young Adult Cancer
Dr. Peter McCarthy, Consultant Haematologist Specialising in Adolescent and Young Adult (AYA) Cancer
Niamh O'Sullivan, Assistant Director of Nursing (ADON) for Adolescent and Young Adult (AYA) Cancer, Children's Health Ireland (CHI), Crumlin and St. James's Hospital, Dublin
15:10
Navigating Palliative Care with Adolescents and Young Adults with Cancer in Northern Ireland
Lisa Callendar, Teenage Cancer Trust's Teenage and Young Adult Clinical Nurse Specialist, South Eastern Health and Social Care Trust
Simon Darby, Social Work Manager, Young Lives vs Cancer (formerly CLIC Sargent)
15:30
Questions and Answers
15:40
Stretch, Coffee, Networking & Poster Exhibition
SESSION 4
Chairs: Ms. Erin Shepherd, Dr. Marian Williams
16:00
Oral Abstract Presentations
Advanced Care Planning in Adolescents and Young Adults (AYA) with Life-Limiting or Life-Threatening Illness: A Scoping Review
Dr. Hannah Linane
Professionals' Discussion of Loss and Grief with Parents of Children with Life-Limiting Severe Neurological Impairment
Elaine Brennan, University College Dublin
A Prospective Review of Paediatric Trainees' Exposure to Palliative Care in Irish Hospitals
Dr. Katie Flinn, CHI Crumlin
16:40
Questions and Answers
16:50
BUMBLEance Presentation
Ian Fallon, General Manager, BUMBLEance
17:00
Close
Day 2
Friday, 26 April
09:25
Welcome
SESSION 5
Chair: Fiona Woods, Head of Clinical Education, LauraLynn Children's Hospice
09:30
NI Paediatric Palliative Care - Update
Dr. David Graham, Consultant Paediatrician (General Paediatrics, Neonatal & Community Paediatrics) & Trust Medical Lead for Paediatric Palliative Care within the Southern Health & Social Care Trust, Co-chair Northern Ireland Paediatric Palliative Care Network
09:50
Update from Republic of Ireland Paediatric Palliative Care
Dr. Fiona McElligott, Consultant in Paediatric Palliative Medicine, Children's Health Ireland and The Rotunda Hospital, School of Medicine, University College Dublin
10:10
Babies, Children and Young People with Life-Limiting Conditions; What Does the Data Tell Us?
Prof. Lorna Fraser, Professor of Palliative Care and Child Health, King's College London
11:00
Questions and Answers
11:10
Stretch, Coffee, Networking & Poster Exhibition
SESSION 6
Chairs: Dr. Mary Devins, Consultant in Paediatric Palliative Medicine, Children's Health Ireland at Crumlin; Ms. Paula O'Reilly, Chief Executive Officer, Irish Hospice Foundation
11:30
Antenatal Cardiology
Prof. Orla Franklin, Clinical Associate Professor, Consultant in Paediatric Cardiology, Children's Health Ireland
12:10
Oral Abstract Presentations
The Holistic Needs Assessment Identifies Child and Family Priorities and Offers Choice in Children's Palliative Care
Vicky Malik, LauraLynn Children's Hospice
Quality Improvement Project: Supporting Antenatal Palliative Care Referral Following Life Limiting Fetal Diagnosis
Dr. Mairead McGinn, Belfast Health and Social Care Trust
12:35
Questions and Answers
12:45
Parent Presentation: A Mother's Story
Vlasta Byrtusová
13:00
Lunch, Networking & Poster Exhibition
SESSION 7
Chairs: Dr. Mary Devins, Consultant in Paediatric Palliative Medicine, Children's Health Ireland at Crumlin; Ms. Paula O'Reilly, Chief Executive Officer, Irish Hospice Foundation
14:00
Perinatal Palliative Care: Spirituality, Care and Memory
Dr. Daniel Nuzum, Pastoral Care Team, Marymount University Hospital and Hospice, Cork and Director of Clinical Pastoral Education, Cork University Hospital
14:30
Byte-Sized Reflections: Is the Tech Revolution Good or Bad for Palliative Care?
Prof. Adam Rapoport
15:00
Questions and Answers
15:15
Abstract Prizes
Final Comments
15:30
Close
10 CPD hours awarded by the NMBI
5 CPD hours for 25th and 5 for 26th awarded by RCPI